CBTN

Expanding Access to Pediatric Brain Tumor Research on the Kids First Data Resource Portal

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Thanks to the recent addition of the entire Children’s Brain Tumor Network (CBTN) dataset, a joint study between Kids First and Childhood Cancer Data Initiative (CCDI), to the Gabriella Miller Kids First Program (Kids First) Portal, researchers now have access to a more extensive dataset on pediatric brain tumors than ever before. Since breakthroughs are more likely by continuously collecting, verifying, and making new data available to researchers studying pediatric brain tumors, this expansion is a significant step toward finding new treatments and cures.

Highlights of the New Data Release

  • This addition includes imaging data, parental sequencing data, and a complete view of the CBTN cohort, including participants without specimens or data.
  • Enhanced quality control measures ensure data accuracy, completeness, and consistency.
  • Researchers can now search for data by specific criteria, such as age, gender, race, ethnicity, and diagnosis.
  • The data is available through the Kids First portal, making it easier for researchers to access and analyze.

The Importance of This Data Release

This data release represents a new milestone in pediatric brain tumor research. By providing researchers with a centralized platform to access and analyze a wide range of data, the hope is to accelerate the discovery of new treatments and improve outcomes for children with brain tumors.

“We are thrilled to make our data available through the Kids First Data Resource Center,” said Allison Heath, Ph.D, Director of Data Technology and Innovation at Children’s Hospital of Philadelphia-Center for Data-Driven Discovery in Biomedicine. “This collaboration empowers researchers to delve deeper into the complexities of pediatric brain tumors and ultimately improve outcomes for children and their families from one central source.”

Critical Benefits for Researchers

  • Enhanced Collaboration: The availability of this data can foster collaboration among researchers from different institutions and disciplines.
  • Accelerated Discovery: Researchers can use this data to identify new biomarkers, develop targeted therapies, and improve diagnostic tools.
  • Improved Outcomes for Patients: The goal is to improve the lives of children with brain tumors by advancing research and developing more effective treatments.

“The addition of the CBTN data to the Kids First portal is a major step forward in our mission to accelerate pediatric cancer research,” said Marcia Fournier, Ph.D., Program Officer for the Gabriella Miller Kids First Pediatric Research Program. “We are confident that this collaboration will lead to significant advancements in the field.”

Accessing the Data

CBTN encourages researchers to explore this valuable new resource and contribute to the ongoing efforts to improve the lives of children with brain tumors. The CBTN data is now accessible through the Kids First portal. Researchers can sign up to access data, tools, and resources at no charge.

Additional Resources