Pacific Pediatric Neuro-Oncology Consortium
The Pacific Pediatric Neuro-Oncology Consortium (PNOC) is an international consortium with study sites within the United States, Canada, Europe and Australia. PNOC is dedicated to bringing new therapies to children and young adults with brain tumors - with the goal to improve outcomes by translating the latest findings in brain tumor biology into better treatments for children.
Neurofibromatosis 2 (NF2) is a rare genetic disorder that is primarily characterized by noncancerous (benign) tumors of the nerves that transmit balance and sound impulses from the inner ears to the brain (bilateral acoustic neuromas/vestibular schwannomas). NF Biosolutions is partnering with CBTN on biobanking and research efforts to discover the underlying causes and identification of potential treatments through molecular analysis.
ETMR One Registry
The ETMR One Registry has partnered with The Children’s Brain Tumor Network (CBTN) for the collection and processing of high-quality ETMR biospecimens and the associated genomic analysis of these tumor samples. Together, we aim to develop ETMR cell lines and transplantable tumor models which will be made available to dedicated researchers from around the globe.
Chordoma Foundation Biobank
The Chordoma Foundation Biobank initiative will share biospecimens, clinical and genomic data via the expertise and tools created by the CBTN's Operations Center at CHOP to accelerate chordoma biospecimen based research. CBTN Operations will serve as not only the central biospecimen repository but also the phenotypic and genomic data management center for the Chordoma Foundation.
Project OPEN Oligo
Project OPEN Oligo will define a new accelerated model for increasing ‘real-time’ collaborative research to empower discovery of improved treatments for people diagnosed with an Oligodendroglioma across a data-driven clinical trial and basic research ecosystem.