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Foundation and Family Partnerships

Patients and their families play an important role as partners in the research process to discover better treatments for children diagnosed with a brain tumor. Patients and their families can support and advance the CBTN's research in a number of different ways including financial support, advocacy & outreach, research enrollment, education, and many other areas.

Each member of the CBTN is extremely grateful for the donated funds which make this global research effort possible. One-hundred percent of the funds donated to the CBTN are used for research purposes. The CBTN Donor Recognition Program recognizes the significant commitment of foundations, families and individuals to improving children's health around the globe.

If you're interested in providing support to the Children's Brain Tumor Network, please reach out to our team for more information.

Foundation and Family Partnerships

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CBTN Executive Council

Children's Brain Tumor Foundation

Why was Children's Brain Tumor Foundation created?Children’s Brain Tumor Foundation’s mission is improving the treatment, quality of life, and long-term outlook for children and families affected by a brain or spinal cord tumor.Founded in 1988 by dedicated parents and physicians, CBTF connects survi

New York, NY

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CBTN Executive Council

Dragon Master Foundation

Why was Dragon Master Foundation created?[Amanda Haddock, President]My son, David, was 16 when he was diagnosed with GBM. He was the first person in my family to have cancer. We were blind-sided, but determined to find a way to help him survive. David was a joy, a true light in the world, and cancer

Kechi, KS


CBTN Executive Council

10 years

Kortney Rose Foundation

Why was Kortney Rose Foundation created?The Kortney Rose Foundation (KRF), a 501(c)(3) charity, was established in 2006 by Kristen and Rich Gillette after Kortney, their nine-year old daughter’s, life was tragically cut short from a rare brain tumor, Diffuse Intrinsic Pontine Glioma (DIPG) located i

Oceanport, NJ

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CBTN Executive Council

Lilabean Foundation

Mission: The Lilabean Foundation for Pediatric Brain Cancer Research (LBF) seeks to fund critical childhood brain cancer research and help raise awareness of the severity of this fatal disease.

Washington, DC


CBTN Executive Council

Robert Connor Dawes Foundation

Why did you start your foundation?Inspired by a big heart and brain, the Robert Connor Dawes (RCD) Foundation was created in June 2013 in the memory of American-born Robert ‘Connor’ Dawes, who at just 18 years of age, lost his 16-month battle with brain cancer. The RCD Foundation works tirelessly to

Sandringham, Victoria, Australia

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CBTN Executive Council

The Ross K. MacNeill Foundation

Mission: The mission of The Ross K. MacNeill Foundation is to end pediatric brain cancer by funding research that will rapidly develop innovative, non-toxic therapies to put to end the devastating diagnosis of pediatric brain cancer.

Chicago, IL

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CBTN Executive Council

Swifty Foundation

Mission: The Swifty Foundation’s mission is to raise funds and awareness for pediatric brain cancer research by supporting:Tissue DonationResearch CollaborationMedulloblastoma ResearchAboutPrior to being diagnosed with medulloblastoma at the age of 10, Michael Gustafson was the fastest kid in his cl

Woodridge, IL

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CBTN Executive Council

Winning With Wyatt

Why did you start your foundation?Winning With Wyatt supports pediatric brain tumor research and advocacy through leading institutions, including the Ann & Robert H. Lurie Children’s Hospital of Chicago and the Children’s Brain Tumor Network, to find new treatments and a cure for the disease that is

La Grange, Il


CBTN Executive Council

Wylie's Day Foundation

Why was Wylie's Day Foundation created?Wylie graced our lives 28 years ago. He was our first child, our joy and hope. We called him Smiley Wylie. He was diagnosed with a type of brain tumor called a medulloblastoma when he was 11 yrs. old, in the prime of his youth. This is the most common type of c

Ambler, PA

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CBTN Executive Council

JDJ Foundation

Why was JDJ Foundation created?The late Joseph and Donna Marie Blauvelt established a private foundation back in 2003 to donate to various charitable causes where they saw fit.In 2013, my mother, Donna, was diagnosed with cancer for the second time in her life. When she was younger, she had a miscar

New York, NY

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CBTN Executive Council

Infinite Love for Kids Fighting Cancer Foundation

Infinite Love for Kids Fighting Cancer is a volunteer run 501(c)(3) foundation who focuses on providing financial grants to our country’s leading research hospitals and facilities, some of which include the CBTN at the Children’s Hospital of Philadelphia, Memorial Sloan Kettering, Dana-Farber Cancer

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CBTN Executive Council

Musella Foundation for Brain Tumor Research & Information, Inc.

Why did you start the Musella Foundation? I got involved in brain tumors when my sister-in-law, Lana was diagnosed with a Glioblastoma back in 1992. We were told it was hopeless and that there were no clinical trials that would accept her as her tumor was too large. There was no centralized database

Emily's Smiles Foundation

CBTN Executive Council

Emily's Smiles Foundation

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CBTN Executive Council

1 year

Bridge To A Cure Foundation

Why was Bridge to a Cure Foundation created?Bridge To A Cure Foundation Founder and President Robert (Bob) Martin understands the flaws in our healthcare system. He knows why cancer research is failing our children — so much so that not one new drug has been developed to address pediatric brain tumo

Fort Myers, FL

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CBTN Executive Council

Rally for Reid Foundation

Why was Rally for Reid Foundation created?The Rally for Reid Foundation was started in honor of our sweet brain tumor warrior, Reid William Gleeson, who passed away from brain cancer at the age of 5. Reid was diagnosed with Medulloblastoma at 27 months, and it recurred after only three months off tr

Iowa City, Iowa


Christopher Brandle Joy of Life Foundation

Oakton, NJ

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Grayson Saves Foundation

Mission: The Grayson Saves Foundation’s goal is to provide monetary assistance to help reduce the financial hardships associated with pediatric brain tumors. Additionally, the foundation promotes awareness of pediatric brain tumors and supports the research to treat pediatric brain tumors. Through t

Hockessin, DE

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Kyle Daniel Kerpan Foundation

Mission: The mission of the Kyle Daniel Kerpan Foundation is to support and enhance the well-being of pediatric brain tumor patients through programs and activities developed to help and encourage them to reach their full potential, and to further develop programs for siblings of pediatric brain tum

Philadelphia, PA

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Smashing Walnuts

Mission: Our organization provides funding, lobbying and directed resources to develop better treatment protocols and a cure. We partner with government organizations, lawmakers, businesses, nonprofits, communities and children who share our goal.

Leesburg, VA


Thea's Star of Hope

Location: Trenton, NJMission: Funding pediatric cancer research that will lead to improved treatments for children with brain tumors.Contact:

Trenton, NJ