Team Ax Foundation.png


Foundation and Family Partnerships

Patients and their families can support and advance CBTN's research in a number of different ways, including providing financial support, supporting advocacy & outreach efforts, encouraging ongoing research enrollment, educating others about CBTN, and beyond.

Philanthropy make this global research effort possible--one-hundred percent of donated funds are used for research purposes.

CBTN Executive Council

The CBTN Executive Council is composed of individuals and organizations committed to supporting and advancing pediatric brain tumor research together. They partner with CBTN leadership and act as the community stakeholder representative to drive global awareness, usage and impact of CBTN, and help to ensure the sustainability of CBTN.

If you're interested in providing support to the Children's Brain Tumor Network or joining the CBTN Executive Council, please reach out to Gerri Trooskin, Director of Partnerships, for more information.

Foundation and Family Partnerships

Asset 1.png

CBTN Executive Council

1 year

Bridge To A Cure Foundation

Why was Bridge to a Cure Foundation created?Bridge To A Cure Foundation Founder and President Robert (Bob) Martin understands the flaws in our healthcare system. He knows why cancer research is failing our children — so much so that not one new drug has been developed to address pediatric brain tumo

Fort Myers, FL


CBTN Executive Council

Chad Tough Defeat DIPG Foundation

Why was Chad Tough Defeat DIPG Foundation created?In September 2014, two families, 500 miles away from each other, were hit with the most devastating news imaginable; each of their sons was diagnosed with diffuse intrinsic pontine glioma (DIPG), the deadliest form of pediatric brain cancer. Each wer

Saline, MI

CBTF Blocks Logo_STKD_FNL_010719-01.png

CBTN Executive Council

Children's Brain Tumor Foundation

Why was Children's Brain Tumor Foundation created?Children’s Brain Tumor Foundation’s mission is improving the treatment, quality of life, and long-term outlook for children and families affected by a brain or spinal cord tumor.Founded in 1988 by dedicated parents and physicians, CBTF connects survi

New York, NY

CureMEdullo Logo.png


Established in 2012 in honor of Carson Leslie, who passed away at the age of 17 after a three-year battle with medulloblastoma, the Carson Leslie Foundation (CLF)’s mission is to raise funds for research leading to a cure for pediatric cancer and to enrich the lives of children fighting the disease

Dallas, TX

DDRFA DIPGAlliance Transparent BkGrnd.png

CBTN Executive Council

DIPG-DMG Research Funding Alliance

Why was the DIPG-DMG Research Funding Alliance created?The DIPG DMG Research Funding Alliance began in 2-22-2022 with a very simple charge – to fund DIPG & DMG like lives are depending on it. We are families, funds and foundations who came together because we know DIPG & DMG firsthand. We know DIP

Manhattan, KS


CBTN Executive Council

Dragon Master Initiative

Why was Dragon Master Initiative created?[Amanda Haddock, President]My son, David, was 16 when he was diagnosed with GBM. He was the first person in my family to have cancer. We were blind-sided, but determined to find a way to help him survive. David was a joy, a true light in the world, and cancer

Kechi, KS

Emily's Smiles Foundation

CBTN Executive Council

Emily's Smiles Foundation

HFTC logo

CBTN Executive Council

Head for the Cure Foundation

Why was Head for the Cure Foundation created?Chris Anthony was diagnosed with a glioblastoma multiforme (GBM) brain tumor in October 2000 at the age of 34. An avid runner, Chris had the idea to start a run to raise money and awareness for brain cancer. After his passing, Chris’ family, led by brothe

Kansas City, MO

Infinite Love for Kids Logo

CBTN Executive Council

Infinite Love for Kids Fighting Cancer Foundation

Infinite Love for Kids Fighting Cancer is a volunteer run 501(c)(3) foundation who focuses on providing financial grants to our country’s leading research hospitals and facilities, some of which include the CBTN at the Children’s Hospital of Philadelphia, Memorial Sloan Kettering, Dana-Farber Cancer

JDJ Logo

CBTN Executive Council

JDJ Foundation

Why was JDJ Foundation created?The late Joseph and Donna Marie Blauvelt established a private foundation back in 2003 to donate to various charitable causes where they saw fit.In 2013, my mother, Donna, was diagnosed with cancer for the second time in her life. When she was younger, she had a miscar

New York, NY

KJTF Full logo.png

Kids Join the Fight

To empower kids to join the fight against pediatric cancer to find a CURE and help provide CARE.

New Orleans, LA


10 years

Kortney Rose Foundation

Why was Kortney Rose Foundation created?The Kortney Rose Foundation (KRF), a 501(c)(3) charity, was established in 2006 by Kristen and Rich Gillette after Kortney, their nine-year old daughter’s, life was tragically cut short from a rare brain tumor, Diffuse Intrinsic Pontine Glioma (DIPG) located i

Oceanport, NJ

Kyle Daniel Kerpan Foundation Logo-01.png

CBTN Supporter

Kyle Daniel Kerpan Foundation

Mission: The mission of the Kyle Daniel Kerpan Foundation is to support and enhance the well-being of pediatric brain tumor patients through programs and activities developed to help and encourage them to reach their full potential, and to further develop programs for siblings of pediatric brain tum

Philadelphia, PA

Lilabean Foundation Logo-01.png

CBTN Executive Council

Lilabean Foundation

Mission: The Lilabean Foundation for Pediatric Brain Cancer Research (LBF) seeks to fund critical childhood brain cancer research and help raise awareness of the severity of this fatal disease.

Washington, DC


CBTN Executive Council

Making Headway Foundation

Why was Making Headway Foundation created?After their daughter Cynthia underwent surgery, chemotherapy, and radiation for her malignant brain tumor, Maya and her husband Edward struggled to find the help they needed to try and return to a more “normal” life. They didn’t know where to turn for advice

Chappaqua, NY


CBTN Executive Council

McKenna Claire Foundation

The mission of the McKenna Claire Foundation is to cure pediatric brain cancer by raising awareness, increasing community involvement and funding research.

Huntington Beach, CA

Musella Foundation Logo

CBTN Executive Council

Musella Foundation for Brain Tumor Research & Information, Inc.

Why did you start the Musella Foundation? I got involved in brain tumors when my sister-in-law, Lana was diagnosed with a Glioblastoma back in 1992. We were told it was hopeless and that there were no clinical trials that would accept her as her tumor was too large. There was no centralized database


CBTN Executive Council

Pediatric Brain Tumor Foundation


CBTN Executive Council

Rally Foundation

Rally Foundation for Childhood Cancer Research, a 501(c)(3) nonprofit, empowers volunteers across the country to raise awareness and funds for childhood cancer research to find better treatments with fewer long-term side effects and, ultimately, cures.We are philanthropic seed investors in the next

Atlanta, GA

Rally for Reid Logo

CBTN Executive Council

Rally for Reid Foundation

Why was Rally for Reid Foundation created?The Rally for Reid Foundation was started in honor of our sweet brain tumor warrior, Reid William Gleeson, who passed away from brain cancer at the age of 5. Reid was diagnosed with Medulloblastoma at 27 months, and it recurred after only three months off tr

Iowa City, Iowa

Raymond A. Wood Foundation.svg

CBTN Executive Council

Raymond A. Wood Foundation

Why was Raymond A. Wood Foundation (RAWF) Created?On May 21, 2015, everything changed when the unthinkable happened to 4-year-old Alex Wood and his parents. Suddenly diagnosed with a rare brain tumor (called craniopharyngioma), Alex immediately underwent emergency surgery. He survived. But that was

Ocean City, MD


CBTN Executive Council

Robert Connor Dawes Foundation

Why did you start your foundation?Inspired by a big heart and brain, the Robert Connor Dawes (RCD) Foundation was created in June 2013 in the memory of American-born Robert ‘Connor’ Dawes, who at just 18 years of age, lost his 16-month battle with brain cancer. The RCD Foundation works tirelessly to

Sandringham, Victoria, Australia

Smashing Walnuts Logo@300x.png

Smashing Walnuts

Mission: Our organization provides funding, lobbying and directed resources to develop better treatment protocols and a cure. We partner with government organizations, lawmakers, businesses, nonprofits, communities and children who share our goal.

Leesburg, VA

Swifty Foundation.png

CBTN Executive Council

Swifty Foundation

Mission: The Swifty Foundation’s mission is to raise funds and awareness for pediatric brain cancer research by supporting:Tissue DonationResearch CollaborationMedulloblastoma ResearchAboutPrior to being diagnosed with medulloblastoma at the age of 10, Michael Gustafson was the fastest kid in his cl

Woodridge, IL

Ross K. Macneil Foundation Logo-01.png

CBTN Executive Council

The Ross K. MacNeill Foundation

Mission: The mission of The Ross K. MacNeill Foundation is to end pediatric brain cancer by funding research that will rapidly develop innovative, non-toxic therapies to put to end the devastating diagnosis of pediatric brain cancer.

Chicago, IL


Thea's Star of Hope

Location: Trenton, NJMission: Funding pediatric cancer research that will lead to improved treatments for children with brain tumors.Contact:

Trenton, NJ

Winning With Wyatt@300x.png

CBTN Executive Council

Winning With Wyatt

Why did you start your foundation?Winning With Wyatt supports pediatric brain tumor research and advocacy through leading institutions, including the Ann & Robert H. Lurie Children’s Hospital of Chicago and the Children’s Brain Tumor Network, to find new treatments and a cure for the disease that is

La Grange, Il


CBTN Executive Council

Wylie's Day Foundation

Why was Wylie's Day Foundation created?Wylie graced our lives 28 years ago. He was our first child, our joy and hope. We called him Smiley Wylie. He was diagnosed with a type of brain tumor called a medulloblastoma when he was 11 yrs. old, in the prime of his youth. This is the most common type of c

Ambler, PA