Craniopharyngioma

Craniopharyngioma

Craniopharyngioma.png
129

enrolled participants

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2
Data Projects Supported
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4
Specimen Projects Supported
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Summary of

Craniopharyngioma

Childhood craniopharyngiomas are rare tumors usually found near the pituitary gland (a pea-sized organ at the bottom of the brain that controls other glands) and the hypothalamus (a small cone-shaped organ connected to the pituitary gland by nerves).

Craniopharyngiomas are usually part solid mass and part fluid -filled cyst. They are benign (not cancer) and do not spread to other parts of the brain or to other parts of the body. However, they may grow and press on nearby parts of the brain or other areas, including the pituitary gland, the optic chiasm, optic nerves, and fluid-filled spaces in the brain. Craniopharyngiomas may affect many functions of the brain. They may affect hormone making, growth, and vision. Benign brain tumors need treatment. Who 2016 classification Tumors of sellar region.

Available CBTN Biospecimens

participants with flash-frozen tissue available120

participants with flash-frozen tissue available

participants with match blood76

participants with match blood

participants with match parental specimens17

participants with match parental specimens

participants with cerebral spinal fluid121

participants with cerebral spinal fluid

Available CBTN Pre-clinical Models

genomically characterized cell lines with data available0

genomically characterized cell lines with data available

genomically characterized pdx with data available0

genomically characterized pdx with data available

How do I get access to the specimens?

To request any of the biospecimens, or pre-clinical model please fill out this form.
Request take approx. 3 months and will require review by the scientific committee and MTA.
Need help? Contact us at research@cbtn.org

Explore the data in these informatics portals

How do I get access to the data?

To access the data please follow these instructions. Need help? Contact us at research@cbtn.org
You can access processed data today here by simply logging in to PedcBioPortal
You can request raw data by completing this form. The review normally takes 1 week. Once approved you can access the raw data by creating cohorts of interest on the Kids First Data Resource Portal and performing analysis on the cloud in Cavatica